I met with the liver specialist yesterday. I really like her despite the bad news she had to give me. My sister joined me for the adventure and helped make a very hard day much enjoyable.
I found out I have PSC or Primary Sclerosing Cholangitis. It is an autoimmune disease where my body is attacking my liver, causing my liver to harden with scar tissue. There is no real treatment or cure. The only option is a liver transplant on down the road, for most patients. But I've never been like most patients. Due to my cancer diagnosis, I am not a candidate for a transplant. The anti-rejection drugs that are prescribed for a lifetime following transplant surgery would cause the cancer to grow rapidly. PROGNOSIS If all goes well and the cancer treatments play well with my liver, I have 7 years give or take a few. This would at least let me see my children grow and possibly go on missions, marry and maybe even begin their families. It gives me more time than we first thought. I have more time to spend with the love of my life and make memories to carry on into eternity. When we received the cancer diagnosis I wasn't settled. I felt empty and a bit lost. It wasn't what I was being prepared for. I knew it was bigger. I knew there was more. When Dr. Hatch gave me the rest of the story yesterday, it all felt right and complete. I finally felt settled and peaceful. I am grateful to be living a life with an understanding that even when told officially by a doctor that "I am dying", I can feel peace. I can share peace with those around me and live what life I have left with joy. Not just happiness, but joy. I am at peace.